I kind of have an excellent husband, don't I? And excellent kids. I'm really grateful for my little family of five. I can honestly say these are my most important possessions:
Do you all remember the movie, The Christmas Story, where the dad gets his prize delivered in a box, and it reads, "Fragile", in huge black letters on the side? And as he reads it aloud, he's so overcome from the excitement of actually winning something, he reads it as: "FRA-GEE-LAY". Then wonders aloud if it's French. His wife, the realist, informs him that he misread it, and it was simply, "Fragile". (And then when he opens it, it was that almost dirty women's stocking-ed leg lamp that I thought was so completely wonderful, only a Lava lamp would compare to such a novelty).
Anyway, whenever I hear that word, or read it, I'm inclined to first pronounce it the white-trash French way, as well....just because it's a word that means something special to me. If I consider something fragile, it's likened to a baby, or Cole's feelings, or artwork, or things I take great pride in...and very possibly, I've created my own definition. But to me, it's an important word. More than just "fragile". It's FRA-GEE-LAY. But only in my head. Because yeah, I know how stupid it sounds. Hope that made some sort of sense, cause it's the prologue of my story.
I'm sure you remember all my rants and raves, and sobs and heartaches about Sydney. Sometimes with her life is so great. She's fun, and she behaves as a two and a half year old should--complete with good and bad times. Sometimes it's like my heart is being ripped from my chest--I see that she's having a hard time processing and understanding, and I'm not giving her what she needs, and I don't know if there's a way she can get it--and if there is, what can I do for her? Sometimes even when you've made the decision to seek out helpful resources, it's still such a huge ordeal to figure out what's right for your needs. Or, right for Sydney's needs, I guess.
So lately I've been pretty quiet about everything on the Syd front. I think this is because when people would ask, it was always more of the same. She's been doing her thing, and just getting by. Which is fine...it's just not that interesting. And, if I would dwell on it, it would be kind of depressing, because I really hoped there would be a huge change. Like Magic. I'm aware of how dumb that sounds, but if I'm honest, I hope for a lot of dumb things. And I won't apologize for them, if they're for my kiddos.
I guess I could have Syd diagnosed. What that exactly means, I haven't a clue. All I know, is that I've avoided it. I have been told she's "on the spectrum". What that means, I'm not too sure, either. But I know it's the Autism spectrum. Now, how high or low or whatever she is, I've refused to find out just yet. I know that Cole was evaluated on his 3rd birthday, because that's when Kids Who Count stops service. (And, to my great relief, he was completely fine--he didn't pass for any extended help, and it was the best "non passing" news I've ever received). From three years up, there are quite a few other options available, and they'll help you choose the one that's supposedly right for your child and the needs they have. I'm not surprised she's on the spectrum, actually. I believe I'm on the spectrum. I'm pretty sure Jeff is, as well.
When I take her to her group therapy, where we have play time, and group time, and a craft, and a snack, I talk to the other moms there that are in the same boat as me. Some have had their children diagnosed, and some haven't. Those of us that have chosen not to go through with the diagnosis just yet, are just kind of clinging to the hope that maybe it's NOT something that will be permanent, or long term. Maybe our kids are just a little behind, and they'll get it when they're good and ready. The other moms are in full swing with their counteractions to their child being diagnosed with Autism, Aspergers, selective mute-ism, etc. And I applaud their courage. Because I'm not there, just yet. We are all scared that we are going to find out our worst fear. We show up with smiles, and are honestly so excited for each other when we mention victories our babies have during the week. But if asked, or if we just listen to each other, our fears are all the same. Does our child have disabilities? How will we deal with this possibility? We love them so much, that isn't a question, but their three year old birthday is coming very quickly...and there are still so many more improvements to be made.
See? This is why I stay quiet. Because it's just too much...too depressing? Too scary. Way too fragile.
But I need to mention Syd's progress lately. Regardless of how fragile this hope I have has become, she's grown by leaps and bounds. She's saying phrases like; "Oh Man!", and copying sentences and words like crazy. She has been saying, (with coaching), "I M booceeule. (I am beautiful). And she knows she's saying that she's beautiful. Today she answered the question, "Do you want something to drink"?, with an audible, "yes". Little, fragile things, but so important. So taken for granted, usually, but so important. I needed to mention this. Because I've kept it really close to my heart for the last week, and I'm just getting brave enough to start to hope again that all will be well. And I want to clarify that if I am to be told that Syd does have disabilities, and that it will be a lifelong task for both her and myself, I will be content with it. If that's what happens, then it happens, and my little Squid is still my Squid. She has a special place in my heart that belongs only to her, and always will. I hope I haven't made anyone think I won't allow it, or I won't adapt to learning and being what she needs me to be. I think it's important to know the feelings and heartache, though, of the possibility of your child being different. Of Being misunderstood, or being judged. I have to say that despite how it's torn me up, I'm thankful for this experience, because it's helped me to understand some things I was really ignorant about, before. And if I've ever been dumb, (which happens regularly), and said something asinine or hurtful, (which is also how I roll), I apologize. I honestly apologize a million times over. Because it's not easy. Not any of it. And because our love for our children is ferocious. And fragile at the same time.
Hope your week is filled with treasures. Enjoy the little things. And be so grateful.
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